Extrait

Background and study aims Asthma is one of the commonest long-term condition affecting children in the UK. South Asian children are more likely to suffer with symptoms and be admitted to hospital, but are less likely to understand their medication or be involved in managing their condition. Although there are many efforts made to improve the wellbeing of children with asthma, these are generally less successful for south Asian children than for white children. Services that have been developed jointly with children and families have been shown to work better by delivering solutions tailored to the needs of the children and their families that are also practical from profesionals’ perspectives. This study aims to use a collaborative method of designing healthcare interventions to develop an intervention programme for south Asian children with asthma. Who can participate? Different people are welcome to participate at different stages of the project initially, with everyone coming together in the final stages. People who fit the following criteria will be eligible to participate: Children aged 4-12 years old who have asthma, from either South Asian or White British backgrounds, parents and extended family members of children with asthma, South Asian adults aged 18yrs upwards, with or without asthma, healthcare professionals who have a role in managing asthma in children or in running children’s services are also eligible. What does the study involve? This study has several sections spread over 2 years, including: Focus groups: There are usually about 6 to 10 people in a group and they take around 1 hour. The groups will discuss asthma and will be held in community centres or health centres around Leicester. They will be run in several different languages at different times of day. Interviews: At an interview you will asked to talk about your experiences of having asthma, having a child with asthma, or working with children with asthma. The interviews usually take around 1 1/2 hours, at a time and day to suit you. Interpreters will be available. Usually, we will interview one parent and then one child, and sometimes a grandparent or the other parent. This will usually happen on the same day at the same place, one after the other. We can also do a joint family interview if people feel more comfortable. Workshops: At the first workshop, we will go through the results so far and work in small groups to develop ideas and suggestions to help children with asthma. At the second workshop, we’ll perfect the ideas and turn them into to workable plans to be used in Leicester. Each workshop will take approximately 2 hours in total and parts of it will be recorded. They’ll be in health centres or community centres or at the Universities. We’ll arrange the days and times to be convenient to everyone, will provide refreshments and will have translators available. Results meetings These short meetings will be held towards the end of the project to let everyone know the results of the study. There will be options for you to get involved in presenting the results, but you can also just come and listen if you prefer. Evaluation Interviews (Talking to us about your experience of taking part) At the end of the study, we might ask you to tell us about your experience in taking part in this study. This will be a very short (10 minute) interview, usually over the phone. What are the possible benefits and risks of participating? We hope that the information we get from this study will help improve the lives of children with asthma. Taking part will take up your time. Where is the study run from? The University of Leicester is running the study, supported by De Montfort University, Leicester Partnership Trust and University Hospitals Leicester NHS Trust. When is study starting and how long is it expected to run for? The study starts in September 2010 and will run for about 18 months, finishing in February 2013. Who is funding the study? The money for the study has come from the National Institute of Health Research - Health Services Research Programme. Who is the main contact? Dr Deborah Bird [email protected]

Critère d'inclusion

• Asthma

Liens

• ictrp
• isrctn